Please help! PT with a Difficult Torticollis Case, Needs Some Advice.

DEAR ERI COMMUNITY: Posting from Brandy

Hello all, I need help!
I have a baby (pt) with torticollis. She has been treated for several months. The baby also had GI issues, found out she has allergies, etc. She is extremely irritable and doesn’t calm easily. She switches sides for her tilt often. I referred her to a neurologist and craniosacral therapist/chiropractor for benign paroxysmal torticollis of infancy. Obviously no one has heard of this. The mom (due to financial concerns) ended up leaving here and cont. on with EI, but cont. to call and keep me updated and bounce ideas off of me. I also referred the pt. to a pedi/neuro opthamologist who states vision is normal. The opthamologist is referring the pt. to a HEENT for inner ear issues. I have run out of reasons/ideas why this pt. cont. to have torticollis and switch sides. Any other ideas for this poor mom? The baby is probably about 8 months now.

Please post your comments below to help Brandy.

Thank you

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5 Responses to Please help! PT with a Difficult Torticollis Case, Needs Some Advice.

  1. Vickie says:

    It’s wonderful you have such a relationship to keep in contact with this parent! Just a few ideas, has Botox been explored as a possible option to allow for better outcomes in therapy? Also a developmental optometrist would look into the baby’s visual perception…not just vision…two different concepts there. Maybe perhaps baby would respond to pool therapy too? Hope these ideas give you and Mom some inspirations! Best wishes!!

  2. jackie says:

    I found that children with Gi problems tilt there head to relieve the acid reflex. So if the Gi problems are resolved the head tilt seems to improve as well. Jackie Pt in SI

  3. Jocelyn McGrath says:

    Silent Reflux? You mentioned GI issues, not sure what they have found so far. But severe reflux could be behind the irritability, difficulty calming & maybe the switching sides of torticollis? It can be incredibly uncomfortable for babies & finding a comfortable position is difficult. Good luck!

  4. Mandy Washington says:

    Judy posts:
    You mentioned GI. Had Sandifers Syndrome been ruled out?

    Judy PT

  5. Mandy Washington says:

    Post from Linda:
    We recently had a child come to the office also side bending her head sometime to the right and other times to the left. I did not consider it a torticolis since she had full ROM on both sides but it was unusual. I consulted with my OT and she thought it could be some visual issue that had nothing to do with the eye being in tact which is what the opthomologist will check but suggested the child be seen by a developmental optomotrist who checks how the eyes work together to perceive. Good luck.

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